Work Package 6: Addressing barriers and facilitators in cancer screening

WP 6

barriers trans

Addressing

norway trans

OUS, Norway

Work Package Summary

The overall objective is to coordinate and support activities reducing inequalities in access to and quality of breast, cervical and colorectal cancer screening programs and care services in Europe.

 

Specific objectives are as follows:

 

1) To identify and address barriers and facilitators both at the system level within various health systems and at the individual level within different cultures;

2) To facilitate the exchange of experiences and best practices among the MS to ensure sustainable breast, cervical and colorectal cancer screening programs.

Task NrTask NameDescriptionParticipants
T6.1Barrier and facilitator
assessment and
management in cancer
screening programmes
across Europe with the
emphasis on barriers for successful screening
implementation in Eastern and Central Europe
Eastern/Central European countries are characterised by delayed or only
partial implementation of programs and a lower screening coverage compared
to the Western European countries. Thus, a better understanding of barriers
and facilitators is required by policy makers and at an organisational level in
Eastern/Central European countries. The European barrier assessment tool
developed in Task 4.3 will be used to identify the barriers to implementation of
organized screening programmes in Eastern/Central European countries. The
most useful evidence-based solutions will be used to address the barriers.
This task will be led by LoR, Italy.
LU
PMSI IO,
CIPH,UZIS,
PHCI,OIL
LoR, AUSLRE,
IOCN, NOI,
DYPEDE, OUS,
NNGYK, DOHI,
CPO
T6.2Systemic barriersNations with established cancer screening programs regularly document key
performance indicators, barriers, and facilitators typically within their native
language ‘grey literature.’ Summarizing this dispersed knowledge across
European MS requires significant commitment of time and resources. Task
activities will be organized with the following subtasks:
6.2.1. Develop and provide health-policy decision-makers with an agile tool to
improve organisation of breast, cervical and colorectal cancer screening.
6.2.2. Leverage an emerging disruptive technology such as large language
models for efficient extraction of information on cancer screening barriers and
facilitators across EU countries
6.3.3. Systematize and better understand systemic barriers to CRC screening
in Europe given high CRC incidence, age-related nature, complexity, lower
participation rates and economic impact.
This task will be led by TAI, Estonia.
TAI, GÖG,
PHCI, ISPRO,
NIPH, OIL, ICO,
DYPEDE,
AUSLRE, CPO,
LSMUKK, OUS,
T6.3Individual barriersAchieving health equity in Europe requires clear understanding of individual
barriers, and identification of strategies which increase cancer screening
awareness, access, and uptake among the screening target group. This task
will entail activities organised within the following subtasks:
6.3.1: A systematic review of individual barriers and facilitators that improve
participation rates in cancer screening. The systematic search will consider
tools and strategies from relevant fields of study (communication, technological
sciences, medicine, etc.).
6.3.2: A case study to demonstrate how a data-driven approach can identify
individual screening barriers and facilitators for non-participation in different
screening programs and subpopulations.
6.3.3: Results of subtasks 6.3.2 and 6.3.1 will be combined to provide
recommendations on how a data-driven approach can help prioritise
approaches to addressing barriers and facilitators in cancer screening
programs for in general public and sub-populations.
This task will be led by RSYD, Denmark.
RSYD, GÖG,
TAI, THL,
DoH IE, OIL,
PHC, ICO,PHCI
CSF, DYPEDE,
HSE, ISS, CPO,
AUSLRE,
LSMUKK, OUS,
IACS, NCI,
IU NAMSU
T6.4Immigrant populationsStrategies for increased cancer screening participation among immigrants will be developed, including increasing health literacy and awareness of cancer
and cancer screening, through culturally-tailored communication. The task will
entail activities organised within three subtasks:
6.4.1: Quantitative analyses of specific immigrant populations and the
screening program coverage among screening target populations at country
level, using EUROSTAT and national data sources, and a literature review of
individual and system-level screening barriers among immigrants
6.4.2: Select 6-10 significant groups of immigrants and develop tailored
screening information materials. The groups will be selected based on
statistics (6.4.1), interest of partners contributing to this task, and insight of
professionals with relevant knowledge on cultural context, healthcare systems
and language.
6.4.3: Study the impact of using the newly developed materials and
approaches compared to conventional invitation letters on screening
attendance in a pilot, and develop guidelines for “best practice” for screening
immigrants.
This task will be led by OUS, Norway.
GÖG, RSYD,DoH IE, ISPRO,
PHCI, RIVM
OUS, CSF,
MaR, CPO,
IRFMN, RCC,
AUSLRE, HSE
T6.5Improved cancer screening for people with intellectual
disabilities (IDs)
6.5.1. A literature review on cancer screening programs for people with IDs in
Europe. The review will examine the effectiveness of existing cancer screening
programs, access barriers and strategies that have been implemented to
address these barriers, if any.
6.5.2. European stakeholders will be interviewed focusing on the experiences
with cancer screening of people with IDs and strategies that have been
effective in improving their cancer screening rates.
6.5.3. Analysis of available Norwegian Cancer Registry data on cancer
screening in people with IDs. Norwegian registry data have several
advantages over most other data from European countries and the analyses
provided may serve as a template for collecting epidemiologic data in other
countries as well.
6.5.4. A study on feasibility and acceptance of HPV self-sampling of selfsampling
among long-term screening non-attenders with a mild to moderate
mental disability will be conducted. It will consist of a literature review, a survey
among health care professionals in (residential) nursing care, caretakers and
women with a disability, and a feasibility study. Results will be synthesised to
identify best practices for improving cancer screening for people with IDs in
Europe and to guide future data collection and analysis.
This task will be led by DKG, Germany. Major contributors will be Norway
(6.5.3) and Belgium (6.5.4).
LU
PHC, DoH IE,
INCa, SCI, ICO,
PHCI, ISPRO,
DKG, CvKO,
DYPEDE, HSE,
AUSLRE, CPO,
OUS, NCI, IU
NAMSU
T6.6Outreach strategies to other vulnerable populations,
including transgender
populations
Individual and systemic barriers to cervical and breast cancer screening
among gender minorities and other vulnerable populations will be examined
within three subtasks:
6.6.1. A review of screening legislation and practices for cervical and breast
cancer screening for gender minorities in each EU country. New EU-wide recommendations will be developed based on the information provided by this.
6.6.2. Development and piloting of an opt-in registry platform for inviting
individuals who cannot be invited to the screening programs via population
registries.
6.6.3. New inclusive screening materials with gender-neutral language
(invitations, instructions, result letters) and educational materials for healthcare
professionals will be created to minimize any discrimination and ensure
safe healthcare visits for individuals in vulnerable positions. Campaigns to
reach vulnerable populations and raise awareness of screening importance will
be organised.
This task will be led by CSF, Finland.
DoH IE, SoS,
iSPRO, PHCI,
SCI, ICO
CSF, CvKO, DKG, NNGYK,
HSE, AUSLRE,
CPO, MaR,
RSU, BVONL,
OUS, RCC,
T6.7Strategies to increase
health literacy in cancer
screening
To assess the quality and shortcomings of existing patient info material on
cancer screening and to generate a core template for evidence-based effective
communication materials, activities will be executed within the following
subtasks:
6.7.1 Collect and analyse existing patient info material on cancer screening
from MS focusing on the degree of enabling informed decision making. The
validated tool MAPPinfo https://www.stiftunggesundheitswissen.
de/sites/default/files/2022-11/2022_11_MAPPinfo_Checkliste_engl-vf.pdf will be used.
6.7.2. Compile patient info template tool kit to enable informed decision
making, that fulfils established evidence-based criteria on maximizing
unbiasedness and comprehensibility of information.
6.7.3. Develop the concept of «Teach the Trainer» in the context of increasing
health literacy and pilot the program performance.
6.7.4. Develop the screening-specific information, tool-kit (template of
infographic and text blocks) and communication training material to increase
literacy, test and revise for the target population.
This task will be led by NNGYK, Hungary and by UWK, Austria, GÖG, Austria
GÖG, CIPH,
PHCI, DoH IE,
ISPRO, NIPH,
OIL, RIVM
NNGYK, UWK,
UCY, HSE,
AUSLRE, CPO,
PROMIS,
IRFMN, RSU,
LSMUKK, OUS,
IDIVAL, NCI
T6.8Information intervention and toolkit of best practice communication resourcesThe results from previous tasks and other projects on communications during
the Covid pandemic (CovCom, led by a research group from the University of
Stavanger) will be leveraged to develop a tool kit of best practice
communication elements and concepts within the following sub-tasks:
6.8.1. Develop the best practices on communication and translation of complex
but important health messages. Emphasis will be places on using videos for
communication of health information, as well as text, pictures, and infographics
via different dissemination channels. The value of these strategies will be
validated in upcoming randomised controlled trials demonstrating their
influence on participation, knowledge and awareness of the screening.
6.8.2. A reservoir with useful tools for screening programs across Europe will
be compiled in order to provide different elements for building an effective
information plan.
This task will be led by OUS, Norway.
LU
NIHD, THL,
NKIP, ISPRO,
OIL, ICO
OUS, UMIT
TIROL, RSYD,
CSF, DKG,
UWK, AUSLRE,
RSU, LSMUKK,
IOCN, RCC

Task NrTask NameDescriptionParticipantsRoleIn-kind Contributions/Subcontracting
T6.1Barrier and facilitator
assessment and
management in cancer
screening programmes
across Europe with the
emphasis on barriers for successful screening
implementation in Eastern and Central Europe
Eastern/Central European countries are characterised by delayed or only
partial implementation of programs and a lower screening coverage compared
to the Western European countries. Thus, a better understanding of barriers
and facilitators is required by policy makers and at an organisational level in
Eastern/Central European countries. The European barrier assessment tool
developed in Task 4.3 will be used to identify the barriers to implementation of
organized screening programmes in Eastern/Central European countries. The
most useful evidence-based solutions will be used to address the barriers.
This task will be led by LoR, Italy.
LU
PMSI IO,
CIPH,UZIS,
PHCI,OIL
LoR, AUSLRE,
IOCN, NOI,
DYPEDE, OUS,
NNGYK, DOHI,
CPO
COO
BEN
AE
No
T6.2Systemic barriersNations with established cancer screening programs regularly document key
performance indicators, barriers, and facilitators typically within their native
language ‘grey literature.’ Summarizing this dispersed knowledge across
European MS requires significant commitment of time and resources. Task
activities will be organized with the following subtasks:
6.2.1. Develop and provide health-policy decision-makers with an agile tool to
improve organisation of breast, cervical and colorectal cancer screening.
6.2.2. Leverage an emerging disruptive technology such as large language
models for efficient extraction of information on cancer screening barriers and
facilitators across EU countries
6.3.3. Systematize and better understand systemic barriers to CRC screening
in Europe given high CRC incidence, age-related nature, complexity, lower
participation rates and economic impact.
This task will be led by TAI, Estonia.
TAI, GÖG,
PHCI, ISPRO,
NIPH, OIL, ICO,
DYPEDE,
AUSLRE, CPO,
LSMUKK, OUS,
BEN
AE
No
T6.3Individual barriersAchieving health equity in Europe requires clear understanding of individual
barriers, and identification of strategies which increase cancer screening
awareness, access, and uptake among the screening target group. This task
will entail activities organised within the following subtasks:
6.3.1: A systematic review of individual barriers and facilitators that improve
participation rates in cancer screening. The systematic search will consider
tools and strategies from relevant fields of study (communication, technological
sciences, medicine, etc.).
6.3.2: A case study to demonstrate how a data-driven approach can identify
individual screening barriers and facilitators for non-participation in different
screening programs and subpopulations.
6.3.3: Results of subtasks 6.3.2 and 6.3.1 will be combined to provide
recommendations on how a data-driven approach can help prioritise
approaches to addressing barriers and facilitators in cancer screening
programs for in general public and sub-populations.
This task will be led by RSYD, Denmark.
RSYD, GÖG,
TAI, THL,
DoH IE, OIL,
PHC, ICO,PHCI
CSF, DYPEDE,
HSE, ISS, CPO,
AUSLRE,
LSMUKK, OUS,
IACS, NCI,
IU NAMSU
BEN
AE
No
T6.4immigrant populationsStrategies for increased cancer screening participation among immigrants will be developed, including increasing health literacy and awareness of cancer
and cancer screening, through culturally-tailored communication. The task will
entail activities organised within three subtasks:
6.4.1: Quantitative analyses of specific immigrant populations and the
screening program coverage among screening target populations at country
level, using EUROSTAT and national data sources, and a literature review of
individual and system-level screening barriers among immigrants
6.4.2: Select 6-10 significant groups of immigrants and develop tailored
screening information materials. The groups will be selected based on
statistics (6.4.1), interest of partners contributing to this task, and insight of
professionals with relevant knowledge on cultural context, healthcare systems
and language.
6.4.3: Study the impact of using the newly developed materials and
approaches compared to conventional invitation letters on screening
attendance in a pilot, and develop guidelines for “best practice” for screening
immigrants.
This task will be led by OUS, Norway.
GÖG, RSYD,DoH IE, ISPRO,
PHCI, RIVM
OUS, CSF,
MaR, CPO,
IRFMN, RCC,
AUSLRE, HSE
BEN
AE
No
T6.5Improved cancer screening for people with intellectual
disabilities (IDs)
6.5.1. A literature review on cancer screening programs for people with IDs in
Europe. The review will examine the effectiveness of existing cancer screening
programs, access barriers and strategies that have been implemented to
address these barriers, if any.
6.5.2. European stakeholders will be interviewed focusing on the experiences
with cancer screening of people with IDs and strategies that have been
effective in improving their cancer screening rates.
6.5.3. Analysis of available Norwegian Cancer Registry data on cancer
screening in people with IDs. Norwegian registry data have several
advantages over most other data from European countries and the analyses
provided may serve as a template for collecting epidemiologic data in other
countries as well.
6.5.4. A study on feasibility and acceptance of HPV self-sampling of selfsampling
among long-term screening non-attenders with a mild to moderate
mental disability will be conducted. It will consist of a literature review, a survey
among health care professionals in (residential) nursing care, caretakers and
women with a disability, and a feasibility study. Results will be synthesised to
identify best practices for improving cancer screening for people with IDs in
Europe and to guide future data collection and analysis.
This task will be led by DKG, Germany. Major contributors will be Norway
(6.5.3) and Belgium (6.5.4).
LU
PHC, DoH IE,
INCa, SCI, ICO,
PHCI, ISPRO,
DKG, CvKO,
DYPEDE, HSE,
AUSLRE, CPO,
OUS, NCI, IU
NAMSU
COO
BEN
AE
Yes (subcontracting)
T6.6Outreach strategies to other vulnerable populations,
including transgender
populations
Individual and systemic barriers to cervical and breast cancer screening
among gender minorities and other vulnerable populations will be examined
within three subtasks:
6.6.1. A review of screening legislation and practices for cervical and breast
cancer screening for gender minorities in each EU country. New EU-wide recommendations will be developed based on the information provided by this.
6.6.2. Development and piloting of an opt-in registry platform for inviting
individuals who cannot be invited to the screening programs via population
registries.
6.6.3. New inclusive screening materials with gender-neutral language
(invitations, instructions, result letters) and educational materials for healthcare
professionals will be created to minimize any discrimination and ensure
safe healthcare visits for individuals in vulnerable positions. Campaigns to
reach vulnerable populations and raise awareness of screening importance will
be organised.
This task will be led by CSF, Finland.
DoH IE, SoS,
iSPRO, PHCI,
SCI, ICO
CSF, CvKO, DKG, NNGYK,
HSE, AUSLRE,
CPO, MaR,
RSU, BVONL,
OUS, RCC,
BEN
AE
No
T6.7Strategies to increase
health literacy in cancer
screening
To assess the quality and shortcomings of existing patient info material on
cancer screening and to generate a core template for evidence-based effective
communication materials, activities will be executed within the following
subtasks:
6.7.1 Collect and analyse existing patient info material on cancer screening
from MS focusing on the degree of enabling informed decision making. The
validated tool MAPPinfo https://www.stiftunggesundheitswissen.
de/sites/default/files/2022-11/2022_11_MAPPinfo_Checkliste_engl-vf.pdf will be used.
6.7.2. Compile patient info template tool kit to enable informed decision
making, that fulfils established evidence-based criteria on maximizing
unbiasedness and comprehensibility of information.
6.7.3. Develop the concept of «Teach the Trainer» in the context of increasing
health literacy and pilot the program performance.
6.7.4. Develop the screening-specific information, tool-kit (template of
infographic and text blocks) and communication training material to increase
literacy, test and revise for the target population.
This task will be led by NNGYK, Hungary and by UWK, Austria, GÖG, Austria
GÖG, CIPH,
PHCI, DoH IE,
ISPRO, NIPH,
OIL, RIVM
NNGYK, UWK,
UCY, HSE,
AUSLRE, CPO,
PROMIS,
IRFMN, RSU,
LSMUKK, OUS,
IDIVAL, NCI
BEN
AE
No
T6.8Information intervention and toolkit of best practice communication resourcesThe results from previous tasks and other projects on communications during
the Covid pandemic (CovCom, led by a research group from the University of
Stavanger) will be leveraged to develop a tool kit of best practice
communication elements and concepts within the following sub-tasks:
6.8.1. Develop the best practices on communication and translation of complex
but important health messages. Emphasis will be places on using videos for
communication of health information, as well as text, pictures, and infographics
via different dissemination channels. The value of these strategies will be
validated in upcoming randomised controlled trials demonstrating their
influence on participation, knowledge and awareness of the screening.
6.8.2. A reservoir with useful tools for screening programs across Europe will
be compiled in order to provide different elements for building an effective
information plan.
This task will be led by OUS, Norway.
LU
NIHD, THL,
NKIP, ISPRO,
OIL, ICO
OUS, UMIT
TIROL, RSYD,
CSF, DKG,
UWK, AUSLRE,
RSU, LSMUKK,
IOCN, RCC
COO
BEN
AE
Yes (subcontracting)

Subscribe to our newsletter to get news and updates.

Subscribe to our newsletter to get news and updates.

Logo EU EUCanScreen Vertical

 

Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or European Health and Digital Executive Agency (HADEA). Neither the European Union nor HADEA can be held responsible for them.

tiktok

FaceBook

X

Instagram

YouTube

LinkedIn

EUCanScreenLogo t

The general objective of EUCanScreen is to assure sustainable implementation of high-quality screening for breast, cervical and colorectal cancers, as well as implementation of the recently recommended screening programs – for lung, prostate and gastric cancers. EUCanScreen will facilitate the reduction of cancer burden and achieving equity across the EU.

FaceBook

Twitter

Instagram

YouTube

LinkedIn

Logo EU

This project has received funding from the European Union’s EU4HEALTH Programme under the Grant Agreement no 101162959

Print Friendly, PDF & Email
Μετάβαση στο περιεχόμενο